As he starts the “Run Jimmy Run” on Sunday, it’s more than just a celebrity appearance for Rene Robert

By Steve Cichon

BUFFALO, NY- It was nearly a decade ago that Jimmy Griffin lost his devastating battle with an aggressive rare form of dementia. It wasn’t Alzheimer’s– but the Alzheimer’s Association, WNY Chapter, provided information, help and comfort for the mayor’s family as they very quickly began dealing with a new reality.

The race begins at the Mayor Griffin Statue outside Coca-Cola Field and ends inside the ball park with a party in the Centerfield Pavillion, and tickets to the Bisons vs Syracuse Chiefs for race participants.
The race begins at the Mayor Griffin Statue outside Coca-Cola Field and ends inside the ball park with a party in the Centerfield Pavillion, and tickets to the Bisons vs Syracuse Chiefs for race participants.

Since then, the Griffin family has leveraged the mayor’s memory and legacy to raise money and awareness for Alzheimer’s and related dementias with the annual Run Jimmy Run Charity 5k.

Over the last three years, the race and party have raised more than $48,000 for the Alzheimer’s Association, WNY Chapter. It’s also become a beacon of hope in the fight against the disease.

That’s why Sabres great and French Connection winger Rene Robert agreed to join the Run Jimmy Run team this year as honorary starter.

Rene Robert

“Alzheimer’s is a sad disease, and it’s effecting more and more people. I think we should be paying more attention to it than we have in the past,” said Robert, who like Griffin has a bronze statue at the waterfront and a family history with dementia. He watched his mother slowly succumb to the disease.

“One of the hardest things I’ve ever done is putting my mother in a home,” said Robert.

“I was visiting her in Montreal and sleeping on the couch in her apartment one day when she woke up in the middle of the night hysterical. She had no idea who I was and wanted me out of there. It took a couple of hours for me to calm her down and go back to bed.”

The former Sabres, Maple Leafs, Penguins, and Colorado Rockies right winger is sad over the past and scared for the future for himself and his family.

“I have two kids. I have three grandkids. It frightens me.”

His family history, plus 744 games played in the NHL, leave him at greater risk for memory related disease. Robert says he’s been tested and shows no sign of disease, ”but the doctors say it could develop at any point down the line after 14 years of pounding as an NHL level hockey player. Practices. Games. It doesn’t have to be a hard collision, but your brain shifts with every hit.”

As someone who read voraciously about Alzheimer’s as his mother got worse, and continues to keep up on the latest on sports-related brain injury and links to dementia, Robert has valued the research and strides made so far, and pleased to join up with such a great cause.

“The city has revamped itself”

RJR runners tackle a downtown and waterfront course where the scenery has changed considerably during the four years since the first race was run. A lively and still blossoming waterfront was the dream of Mayor Griffin and hundreds of others through the years, including Robert, who credits Terry & Kim Pegula for caring about Buffalo in the same way Mayor Griffin did.

The French Connection statue, one of the new additions to Buffalo’s waterfront since The Pegulas came to toen.

“Terry saw Buffalo had potential, and saw something no one else did, because he invested a lot of his own money, and has made a huge impact on the city and the community. He’s done everything he said he’d do and more,” said Robert. “Ever since Terry and Kim Pegula bought the Sabres, this city has revamped itself. You can see it downtown– the hotels built, development, the atmosphere. The Pegulas really instigated the whole thing.”

If that’s true, we have Rene Robert to thank for our resurging Buffalo as much as anyone.

Pegula has often told the story of falling in love with hockey and the Sabres by driving around Western Pennsylvania in the mid-70’s, trying to find the best spot for WGR to come in on his car radio so he could listen to Ted Darling and Rick Jeanneret call the action of Robert, Martin, Perreault, and all the Sabres greats of that era.

“It has to make you feel good in some way. Maybe we helped Terry love hockey, but he’s the one who’s really moved the city in the direction that it’s going right now.”

Sign up for the Run Jimmy Run and support Alzheimer’s Assn WNY:

For more on Alzheimer’s and related dementias:

Griffin name continues to help charities with Run Jimmy Run Charity 5k

By Steve Cichon

Buffalo, NY – As Mayor, Jim Griffin raised over $20,000 for local charities by sponsoring a decades’ worth of annual runs in South Park. Fast forward 20 years, and the late mayor’s name is now once again in the spotlight in the running world as his family, the Buffalo Bisons and the Alzheimer’s Association of WNY organize the “Run Jimmy Run Charity 5k.”

The race takes runners on a tour of Griffin’s vision for Buffalo, starting the bronze likeness of the mayor outside Coca Cola Field, “The House That Jimmy Built.” The course then heads to City Hall, to the Griffin-imagined Erie Basin Marina, and then back to the ball park for the homeplate finish line, a beer and a ballgame.

An optional one mile walk takes participants from the Griffin statue to City Hall and back, and makes it a family friendly event, ending with a ticket to the afternoon’s Bisons game.

Aside from celebrating the memory of Buffalo’s longest serving top executive and the game he knew would help save downtown, the proceeds will benefit a charity with close ties to the late mayor.

When Griffin was diagnosed with a rare, degenerative brain disease in the months before he died in 2008, outside of Google, his family didn’t know where to turn to learn about Creutzfeld-Jakob Disease. The Alzheimer’s Association of WNY became a support network for the Griffins, as it has thousands of other families suffering through memory loss and dementia.

The $30 cost of pre-registering for the Sunday, July, 21st race includes a ticket to the day’s 1:05 Bisons game, a commemorative baseball-sleeve t-shirt, a chip-timed bib, and a post-race party serving lunch, beer and pop.

The race starts at 10am.

More details and registration information at